|
BQC19
|
The population is composed of patients (including pregnant women and pediatric patients) who have been hospitalized with moderate to severe illness and who underwent a PCR test for SARS-CoV-2 with a negative result.
-
Newborns
-
-
Twins
-
-
Countries
-
-
Ethnic Origin
-
-
Health Status
-
- Participants are included if they were hospitalized with a moderate or severe illness and who underwent a PCR test for SARS-CoV-2 with a negative result.
-
Other Criteria
-
Inclusion criteria for adults and children:
* Patients who were tested for COVID-19 at one of the participating institutions of the BQC19.
Inclusion criteria for adults only:
* Adults capable of consent to research.
* Adults rendered incapable of consent to research due to COVID-19 (sudden and temporary incapacity), if represented by an agent, guardian or curator.
* Adults incapable of consent to research due to a condition other than COVID-19, if represented by an agent, guardian or curator.
-
Supplementary Information about selection criteria
-
Recruitement of adult patients ended on February 14th 2023.
-
Sources of recruitment
-
-
Specific Population
-
-
Supplementary Information
-
Participants are recruited during a hospital stay in a COVID unit or in intensive care.
Recruitement of adult patients ended on February 14th 2023.
-
Number of Participants
-
911
-
Number of Participants with Biological Samples
-
911
-
Supplementary Information about selection criteria
-
BQC19 - Inpatient controls
|
Demographic information, patient type and profile (COVID status, severe/mild disease, age, sex, weight, height, smoking status, drug use, healthcare worker status, etc.), medical history, results of any routine laboratory tests ordered by the attending physician, COVID-19 symptoms information are collected through questionnaires. Obstetrics information (postpartum, pregnancy outcome, baby's COVID status, other infectious pathogens of the mother), is collected from a subset of participants.
Pediatric information (birth weight and length of gestation), is collected from a subset of participants.
Vital sign information such as body temperature, blood pressure, breathing rate and heart rate, oxygen saturation on room air and oxygen therapy are collected.
Blood and stool samples are collected.
-
Start Date
-
2020-05
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
BCQ19 - Inpatient controls - Enrollment
|
|
BQC19
|
The population is composed of adult participants (including pregnant women) with mild illness or who are asymptomatic and who underwent a PCR test for SARS-CoV-2 with a negative result.
-
Minimum age
-
18
-
Newborns
-
-
Twins
-
-
Countries
-
-
Ethnic Origin
-
-
Health Status
-
- Participants with asymptomatic and mild symptoms who underwent a PCR test for SARS-CoV-2 with a negative result are included.
-
Other Criteria
-
Inclusion:
* Patients who were tested for COVID-19 at one of the participating institutions of the BQC19.
* Adults capable of consent to research.
* Adults rendered incapable of consent to research due to COVID-19 (sudden and temporary incapacity), if represented by an agent, guardian or curator.
* Adults incapable of consent to research due to a condition other than COVID-19, if represented by an agent, guardian or curator.
Due to a decrease in PCR screenings, the study stopped requesting for mandatory PCR test since November 2022.
-
Supplementary Information about selection criteria
-
-
Sources of recruitment
-
-
Specific Population
-
-
Supplementary Information
-
Participants are recruited in outpatient clinics or post-COVID clinics.
Recruitement ended on February 14th 2023.
-
Number of Participants
-
136
-
Number of Participants with Biological Samples
-
136
-
Supplementary Information about selection criteria
-
BQC19 - Outpatient controls
|
Patient type and profile information such as COVID status, severe or mild illness, age, sex, weight, height, smoking status, drug use, including whether the individual is a health care worker, obstetrical component such as post-partum state, pregnancy outcome, COVID status of the baby, presence of other infectious pathogens from the mother, medical history and COVID-19 symptoms information are collected through questionnaire.
Pediatric component such as weight at birth and duration of gestation are collected from a subset of participants.
Level of fitness and frailty are also assessed through the Clinical frailty score test.
-
Start Date
-
2020-03
-
End Date
-
2023-02
-
Data sources
-
-
Files
-
BCQ19 - Outpatient controls - Enrollment
|
|
CHMS
|
The population is composed of Canadian individuals between 3 and 79 years of age living in privately occupied dwellings in one of the ten provinces. For the pilot phase and Cycle 1, the minimum age of participants included was 6 years old.
-
Minimum age
-
3
-
Maximum age
-
79
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
-
Ethnic Origin
-
-
Health Status
-
-
Other Criteria
-
Exclusion: People living in Indian Reserves or Crown lands, residents of institutions, full-time members of the Canadian Forces and residents of certain remote regions.
-
Supplementary Information about selection criteria
-
-
Sources of recruitment
-
-
General Population
-
-
Supplementary Information
-
The CHMS will collect data in 16 sites across the country. The collection sites are located in seven provinces: Prince Edward Island, New Brunswick, Quebec, Ontario, Saskatchewan, Alberta and British Columbia, not including the territories, Native reserves or military.
-
Number of Participants
-
5,797
-
Number of Participants with Biological Samples
-
5,651
-
Supplementary Information about selection criteria
-
Cycle 1: 5604 participants
Cycle 2: 6395 participants
Cycle 3: 5785 participants
Cycle 4: 5794 participants
Cycle 5: 5786 participants
Cycle 6: 5797 participants
CHMS population
|
The pre-test consisted of a home interview followed by a series of direct physical and laboratory measures conducted in a clinic in the South Calgary Health Centre.
-
Start Date
-
2004-10
-
End Date
-
2004-12
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
CHMS - Pilot Phase
|
|
CLSA
|
This population is composed of a random sample of Canadians aged 45 to 85 years who consented to an in-home interview and a physical examination component.
-
Minimum age
-
45
-
Maximum age
-
85
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
Vancouver, Victoria, Surrey, Calgary, Winnipeg, Hamilton, Ottawa, Montréal, Sherbrooke, Halifax, and St. John’s
-
Ethnic Origin
-
-
Health Status
-
-
Other Criteria
-
Inclusion: Individuals who are able to respond in either French or English, and able to give consent.
Exclusion (same exclusion criteria as the Statistics Canada Canadian Community Health Survey – Healthy Aging):
-
Supplementary Information about selection criteria
-
-
Sources of recruitment
-
-
General population
-
Specific population
-
General Population
-
-
Selected sample
-
Random digit dialing
-
Specific Population
-
-
Other specific population : Provincial registries
-
Supplementary Information
-
Provincial health registration databases were used for recruitment of the comprehensive cohort. Individuals residing within a 25-50 kilometer radius of the 11 Data collection sites (Vancouver, Victoria, Surrey, Calgary, Winnipeg, Hamilton, Ottawa, Montreal, Sherbrooke, Halifax, and St. John’s) were also recruited.
-
Number of Participants
-
30,097
-
Number of Participants with Biological Samples
-
30,000
CLSA - Comprehensive
|
There are two main ways data is collected in CLSA Comprehensive: first, through an at-home interview and then by having participants visit one of the study's 11 Data Collection Sites. The interviews collected information about physical, medical and emotional health, cognition, as well as the social, lifestyle and economic aspects of participants' lives.
Cognitive tests were administered to assess memory using the Rey Auditory Verbal Learning Test, and executive function using the Mental Alternation Test, the Miami Prospective Memory Test, the Stroop Neurological Screening Test - Victoria version (STP), the Controlled Oral Word
Association Test (FAS) and the Animal Fluency test. Psychomotor speed was measured with the Choice Reaction Times test (CRT).
During visits at Data Collection Sites, participants underwent a range of physical assessments, including height and weight measurements, blood pressure, bone density, vision and hearing tests.
Following consent, blood and urine samples were collected.
-
Start Date
-
2012
-
End Date
-
2015
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
CLSA - Comprehensive - Baseline
|
|
CLSA
|
This population is composed of a representative sample of Canadians aged 45 to 85 years who consented to a telephone interview.
-
Minimum age
-
45
-
Maximum age
-
85
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
-
Ethnic Origin
-
-
Health Status
-
-
Other Criteria
-
Inclusion: Individuals who are able to respond in either French or English, and able to give consent.
Exclusion (same exclusion criteria as the Statistics Canada Canadian Community Health Survey – Healthy Aging):
-
Supplementary Information about selection criteria
-
-
Sources of recruitment
-
-
General population
-
Specific population
-
Participants from existing studies
-
General Population
-
-
Specific Population
-
-
Other specific population : Provincial registries
-
Supplementary Information
-
The Canadian Community Health Survey (CCHS) cycle 4.2 was used as the recruitment vehicle for the telephone interview cohort.
-
Participants from Existing Studies
-
- Canadian Community Health Survey (CCHS) - Healthy Aging
-
Number of Participants
-
21,241
-
Number of Participants with Biological Samples
-
-
Supplementary Information about selection criteria
-
CLSA - Tracking
|
Information about health, medical history, work or retirement activities and social support was collected by telephone interview.
Cognitive tests were administered to assess memory and concentration: the Rey Auditory Verbal Learning Test, the Mental Alternation Test and the Animal Fluency test.
-
Start Date
-
2011
-
End Date
-
2014
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Files
-
CLSA - Tracking - Baseline
|
|
CaG
|
The CaG cohort consists of men and women aged between 40 and 69 years and residing in metropolitan areas of Quebec at the time of recruitment.
-
Minimum age
-
40
-
Maximum age
-
69
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
Montreal, Quebec, Sherbrooke and Saguenay for recruitment phase A. Trois-Rivières and Gatineau were added for recruitment phase B.
-
Ethnic Origin
-
-
Health Status
-
-
Other Criteria
-
Participants were excluded if they were not registered in the FIPA files, if they resided outside the selected regions, lived in First Nations Reserves or long-term healthcare facilities or were in prison.
-
Sources of recruitment
-
-
General Population
-
-
Selected sample
-
Random digit dialing
-
Supplementary Information
-
Participants were randomly chosen to be broadly representative of the population based on provincial health insurance registries—FIPA files (fichier administratif des inscriptions des personnes assurées de la Régie de l’assurance maladie du Québec (RAMQ)).
-
Number of Participants
-
43,034
-
Number of Participants with Biological Samples
-
30,226
-
Supplementary Information about selection criteria
-
Recruitment (2009): 19,985 participants
BALSAC collaboration (2009): 11,467 participants
Residential history (2011): 11,653 participants
Occupational history (2011): 10,891 participants
Nutrition (2012): 10,073 participants
Recruitment (2012): 23,049 participants
CAHHM collaboration (2015): 1,746 participants
Health follow-up (2016): 17,004 participants
COVID-19 (2020-06): 8,187 participants
COVID-19 (2021-03): 6,264 participants
COVID-19 (2021-10): 672 participants
COVID-19 (2022-03): 3,253 participants
COVID-19 (2022-04): 580 participants
CaG population
|
Information about socio-demographic characteristics, lifestyle, mental health, psychosocial environment, personal and family history of disease, healthcare utilization, medication use, and women and men’s reproductive health and history is collected through the health and lifestyle questionnaire.
Cognitive function is assessed.
Anthropometric, blood pressure, bioimpedance, grip strength, bone density, lung function, arterial stiffness, and partial resting electrocardiogram measures are taken.
Blood, saliva and urine samples is also collected.
Linkage with administrative health and environmental databases is completed. Data on diagnoses, ambulatory and inpatient care and prescribed medications are obtained from the RAMQ and MSSS databases. Environmental exposure data is obtained from CANUE.
-
Start Date
-
2009-07
-
End Date
-
2011-03
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Physical measures
-
Biosamples
-
Administrative databases
-
Data sources - Biosamples
-
-
Data sources - Administrative databases
-
-
Health databases
-
Vital statistics databases
-
Environmental databases
-
Files
-
CaG - Recruitment - 2009
|
|
CSHA
|
The population consists of a representative sample of people aged 65 and over on Oct. 1, 1990. Subjects were living in nursing homes, chronic care facilities or collective dwellings such as convents.
-
Minimum age
-
65
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
-
Ethnic Origin
-
-
Health Status
-
- Exclusion of participants with a life-threatening illness (e.g., a condition necessitating life support or terminal cancer)
-
Other Criteria
-
Individuals were excluded if they were from the Yukon and the Northwest Territories, Indian reserves and military units.
-
Supplementary Information about selection criteria
-
Fluency in either English or French required.
-
Sources of recruitment
-
-
Specific Population
-
-
Number of Participants
-
1,255
-
Number of Participants with Biological Samples
-
CSHA - Institution
|
Community participants were interviewed in their homes (where the 3MS cognitive screening test was administered).
The community interview collected also social and demographic information, and assessed disability with ADL and IADL questionnaires. All subjects who scored less than 78 were invited to undergo the clinical assessment as well as a sample of those who scored 78 or over.
Dementia was diagnosed based on a combination of medical and neuropsychological assessments administered in the patient’s home or a clinic. After the physician and neuropsychologist had independently made preliminary diagnoses, they met with the nurse to reach a consensus diagnosis and classified participants as demented, cognitively impaired but not demented (“CIND”), or as cognitively normal.
Diagnostic criteria for dementia followed the Diagnostic and Statistical Manual of Mental Disorders, 3rd edition revised (DSM-III-R); for Alzheimer's disease, the National Institute of Neurological and Communicative Disorders and Stroke and the Alzheimer's Disease and Related Disorders Association (NINCDS-ADRDA); and a draft of the 10th revision of the International Classification of Diseases (ICD) to define subcategories of vascular and other dementias.
The examination was divided into four parts.
First, a nurse registered the subjects and completed consent forms, administered the 3MS exam, tested hearing, vision and vital signs, recorded height, weight and medication use, and obtained the subject's cognitive and family history from a relative, using section H of the Cambridge Mental Disorders of the Elderly Examination (CAMDEX).
Second, a psychometrician, blind to the 3MS score from the interview, administered neuropsychologic tests to subjects with a score of 50 or more for the 3MS exam given by the nurse. A neuropsychologist evaluated the test results in conjunction with the results of the CAMDEX and the 3MS exam administered by the nurse.
Third, a physician reviewed the information collected by the nurse and examined the patient, performing a mental status assessment as well as physical and neurologic examinations. The physician then made a preliminary diagnosis before seeing the neuropsychologist's evaluation. Participants suspected of having dementia or delirium were sent for hematologic and biochemical tests. A blood sample was collected in 9 centres. A risk factor questionnaire for all participants was completed by the person themselves where they were cognitively able to do this, and by a proxy respondent where necessary. A proxy respondent also completed the risk factor questionnaire for a sample of cognitively normal participants who served as controls for the initial case-control risk factor analysis.
-
Start Date
-
1991-02
-
End Date
-
1992-05
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
CSHA - Institution - CSHA1
|
|
CSHA
|
The population consists of a representative sample of people aged 65 and over on Oct. 1, 1990. Subjects were living at home (i.e., not in a long-stay institution) at some time during the recruitment phase of the study.
-
Minimum age
-
65
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
-
Ethnic Origin
-
-
Health Status
-
- Exclusion of participants with a life-threatening illness (e.g., a condition necessitating life support or terminal cancer)
-
Other Criteria
-
Subjects unable to complete a cognitive screening test because of conditions such as deafness, stroke, mental retardation or current illness did not complete the survey questionnaire but were included in the subsequent clinical examination. Individuals were excluded if they were from the Yukon and the Northwest Territories, Indian reserves and military units.
-
Supplementary Information about selection criteria
-
Fluency in either English or French required.
-
Sources of recruitment
-
-
General Population
-
-
Supplementary Information
-
Participants were chosen randomly from Medicare lists in nine provinces or from the Enumeration Composite Record in Ontario.
-
Number of Participants
-
9,008
-
Number of Participants with Biological Samples
-
2,129
-
Supplementary Information about selection criteria
-
CSHA1: Interview (9008 participants), neuropsychological tests (1879 participants), clinical examination (2914 participants), self-completed risk factor questionnaire (6628 participants), proxy risk factor questionnaire (2560 participants). Maintaining contact study: 8512 participants CSHA2: Interview (5703 participants), neuropsychological tests (1399 participants), clinical examination (2305 participants), decedent dataset (2614 participants), institutional interview (1025 participants). CSHA3: Inteview (3437 participants), neuropsychological tests (1476 participants), clinical examination (1322 participants), decedent dataset (1399 participants), institutional interview (284 participants).
CSHA - Community
|
Community participants were interviewed in their homes (where the 3MS cognitive screening test was administered).
The community interview collected also social and demographic information, and assessed disability with ADL and IADL questionnaires. All subjects who scored less than 78 were invited to undergo the clinical assessment as well as a sample of those who scored 78 or over.
Dementia was diagnosed based on a combination of medical and neuropsychological assessments administered in the patient’s home or a clinic. After the physician and neuropsychologist had independently made preliminary diagnoses, they met with the nurse to reach a consensus diagnosis and classified participants as demented, cognitively impaired but not demented (“CIND”), or as cognitively normal.
Diagnostic criteria for dementia followed the Diagnostic and Statistical Manual of Mental Disorders, 3rd edition revised (DSM-III-R); for Alzheimer's disease, the National Institute of Neurological and Communicative Disorders and Stroke and the Alzheimer's Disease and Related Disorders Association (NINCDS-ADRDA); and a draft of the 10th revision of the International Classification of Diseases (ICD) to define subcategories of vascular and other dementias.
The examination was divided into four parts.
First, a nurse registered the subjects and completed consent forms, administered the 3MS exam, tested hearing, vision and vital signs, recorded height, weight and medication use, and obtained the subject's cognitive and family history from a relative, using section H of the Cambridge Mental Disorders of the Elderly Examination (CAMDEX).
Second, a psychometrician, blind to the 3MS score from the interview, administered neuropsychologic tests to subjects with a score of 50 or more for the 3MS exam given by the nurse. A neuropsychologist evaluated the test results in conjunction with the results of the CAMDEX and the 3MS exam administered by the nurse.
Third, a physician reviewed the information collected by the nurse and examined the patient, performing a mental status assessment as well as physical and neurologic examinations. The physician then made a preliminary diagnosis before seeing the neuropsychologist's evaluation.
Participants suspected of having dementia or delirium were sent for hematologic and biochemical tests.
A blood sample was collected in 9 centres.
A risk factor questionnaire for all participants was completed by the person themselves where they were cognitively able to do this, and by a proxy respondent where necessary. A proxy respondent also completed the risk factor questionnaire for a sample of cognitively normal participants who served as controls for the initial case-control risk factor analysis.
-
Start Date
-
1991-02
-
End Date
-
1992-05
-
Data sources
-
-
Questionnaires
-
Cognitive measures
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
CSHA - Community - CSHA1
|
|
CanCOLD
|
|
|
|
FAMILY
|
The mothers population in the FAMILY study is composed of Canadian women living in the Hamilton region, in Ontario. They were recruited during their third trimester of pregnancy (gestational age of 21-39 weeks).
-
Sex
-
Women
-
Pregnant Women
-
-
Second trimester
-
Third trimester
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
Hamilton and Burlington
-
Ethnic Origin
-
-
Health Status
-
-
Other Criteria
-
Women were recruited between 21 to 39 weeks of pregnancy
-
Sources of recruitment
-
-
Specific Population
-
-
Supplementary Information
-
Recruitment occurred at physician offices and ultrasound clinics of 3 hospitals in Hamilton and Burlington (Hamilton Health Sciences, St Joseph's Health Center, and Joseph Brant Memorial Hospital in Burlington)
-
Number of Participants
-
857
-
Number of Participants with Biological Samples
-
857
FAMILY - Mothers
|
Data collection took place at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.
Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household income), lifestyle practices (nutrition, diet, physical activity and related behaviours, smoking history) and parental stress were collected by questionnaire. Self-reported history of weight and hypertension information, before and during pregnancy was also collected.
Height, weight, hip circumference, subscapular and tricep skinfolds, and blood pressure were measured. Finally, fetal growth was assessed by an ultrasound and gestational weight gain and body mass index were calculated. Fasting blood was also collected and gestational diabetes was assessed by a 75 gram oral glucose tolerance test between 24 and 39 weeks of pregnancy with measures of glucose and insulin at 0 and 2 hours.
-
Start Date
-
2004
-
End Date
-
2009
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
FAMILY - Mothers - 21-39 weeks of pregnancy
|
|
FAMILY
|
The partners population in the FAMILY study is composed of Canadian living in the Hamilton region, in Ontario. They were recruited during their pregnant partners third trimester of pregnancy (gestational age of 21-39 weeks).
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
Hamilton and Burlington
-
Ethnic Origin
-
-
Health Status
-
-
Sources of recruitment
-
-
Specific Population
-
-
Other specific population : Partners of the women included in the study.
-
Number of Participants
-
530
-
Number of Participants with Biological Samples
-
530
FAMILY - Fathers
|
Data collection occurred at study visits through questionnaires and physical measurements.
Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household income), lifestyle practices (nutrition, physical activity and related behaviours, smoking history) and parental stress were collected by questionnaire.
Height, weight, waist and hip circumferences, subscapular and tricep skinfolds, and blood pressure were measured. Body mass index was calculated.
Fasting blood was collected for total cholesterol, triglycerides, HDL cholesterol, insulin and cytokines measures.
-
Start Date
-
2004
-
End Date
-
2009
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Biosamples
-
Data sources - Biosamples
-
-
Files
-
FAMILY - Fathers - 21-39 weeks of pregnancy
|
|
CLOUD
|
The population is composed of adults who are able to participate in Vancouver (British Columbia), Edmonton (Alberta), Hamilton (Ontario), Ottawa (Ontario), or Sherbrooke (Quebec).
-
Minimum age
-
19
-
Newborns
-
-
Twins
-
-
Countries
-
-
Territory
-
Vancouver, Edmonton, Hamilton, Ottawa, Sherbrooke
-
Ethnic Origin
-
-
Health Status
-
-
Other Criteria
-
Non-smoking and non-ENDS using participants will be recruited to match the age and sex distribution of the
ENDS and cigarette smoking groups.
-
Sources of recruitment
-
-
General Population
-
-
Supplementary Information
-
Participants are recruited through social media, educational initiatives in schools, awareness programs, the study website, and online health research platforms like REACH BC.
-
Number of Participants
-
400
-
Number of Participants with Biological Samples
-
400
-
Supplementary Information about selection criteria
-
**This population includes:**
* 100 ENDS-only users
* 100 combustible cigarette-only users
* 100 dual e-cigarette and combustible cigarette users
* 100 non-smoking and non-e-cigarette users
CLOUD - Adults
|
Demographic, exposure, and medical history, along with vaping habits (device type, frequency, e-liquid composition, and flavorings), are recorded. Vaping dependence is assessed using the modified Fagerström test.Validated respiratory symptom questionnaires include the St. George’s Respiratory Questionnaire (SGRQ), COPD Assessment Test (CAT), modified Medical Research Council dyspnea scale, International Physical Activity Questionnaire (short form), and McMaster Cough Severity Questionnaire.
An online survey captures respiratory exacerbations and work/school absences. Pulmonary function tests are conducted, along with oscillometry using the tremoFlo™ C-100 system.
Cardiopulmonary Exercise Testing (CPET) is performed to assess cardiac, metabolic, and ventilatory parameters. A chest CT scan and pulmonary MRI are completed, with qualitative image analysis for lung abnormalities.
Blood and lung biospecimens are collected. An optional bronchoscopy allows collection of oral washes, airway epithelial brushings, and bronchoalveolar lavage.
-
Start Date
-
2025-05
-
End Date
-
2027-05
-
Data sources
-
-
Questionnaires
-
Physical measures
-
Biosamples
-
Other : Magnetic Resonance Imaging (MRI), CT Scan, Bronchoscopy, Oscillometry test
-
Data sources - Biosamples
-
-
Blood
-
Tissues : Bronchoscopy samples
-
Files
-
CLOUD - Adults - Visit 1
|
|
CANRESP Dysphagia
|
The population is composed of adults 18 and older presenting with a chronic respiratory disease.
-
Minimum age
-
18
-
Newborns
-
-
Twins
-
-
Countries
-
-
Ethnic Origin
-
-
Health Status
-
- Diagnosed with a chronic respiratory disease such as Chronic Obstructive Pulmonary Disease (COPD) or Pulmonary Fibrosis
-
Sources of recruitment
-
-
Specific Population
-
-
Members of an association
-
Supplementary Information
-
Participants were recruited through the dissemination of a survery link from the following partners: Canadian Lung Association, Lung Health Foundation, Canadian Pulmonary Fibrosis Foundation and Respiplus.
-
Number of Participants
-
2,000
-
Number of Participants with Biological Samples
-
CANRESP Dysphagia population
|
An online questionnaire is adminstrired to collect demographic information, as well as patient-reported measures of swallowing and reflux. Risk of oropharyngeal dysphagia is assessed using the Sydney Swallow Questionnaire (SSQ). Symptoms of laryngopharyngeal reflux are measured using the Reflux Symptom Index (RSI) and swallowing difficulties related to pill intake is evaluated using the PILL-5. Health status and disease impact are assessed using the Chronic Airways Assessment Test (CAAT).
-
Start Date
-
2026-03
-
End Date
-
2027-03
-
Data sources
-
-
Files
-
CANRESP Dysphagia - Stage 1 Survey
|