Individual Study / FAMILY

Family Atherosclerosis Monitoring in Early Life

Family Atherosclerosis Monitoring in Early Life

FAMILY logo
Networks -
Datasets -
Variables -
Start Year
2004
Visit FAMILY

Members

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Investigators Contacts
  • Dr. Stephanie Atkinson
    McMaster University
  • Dr. Koon Teo
    McMaster University
  • Dr. Katherine Morrison
    McMaster University
  • Dr. Stephanie Atkinson
    McMaster University

Design

Study design
Cohort
Follow Up
Participants are followed-up until children are 10 years old. For the index child, questionnaires and physical measures are conducted at birth, 1, 2, 3, 5, 7 and 10 years. For mothers, after the baseline visit in pregnancy questionnaires/case report forms are completed at all follow-up visits of the children. Physical measures are conducted in mothers 3 times at visits when their child is 1, 5 and 10 years old. Partners have questionnaires/CRFs completed at baseline and at the 2, 5, 7 and 10 year time and physical measures at baseline and 5 year visit. Siblings have questionnaires/CRFs completed at baseline, 5 and 10 year visits and physical measures only at baseline and 5 year visit.
Supplementary Information

Marker Paper

Morrison KM, Atkinson SA, Yusuf S, Bourgeois J, McDonald S, McQueen MJ, Persadie R, Hunter B, Pogue J, Teo K; FAMILY investigators. 2009. The Family Atherosclerosis Monitoring In earLY life (FAMILY) study: rationale, design, and baseline data of a study examining the early determinants of atherosclerosis. American heart journal; 158(4): 533-9.

PUBMED 19781411

Recruitment

Recruitment Target
  • Families

Number of Participants

Number of Participants
2,552
Number of Participants with Biological Samples
2,334
Supplementary Information
Mothers: 857 participants
Fathers: 530 participants
Children: 901 participants
Siblings: 264 participants

Access

Availability of data and biosamples

Possible Access to Data
Possible Access to Biosamples
Other

Availability of access information

By contacting the study representative

Sector of research

Possible Access to Data Possible Access to Biosamples
Investigators from the public sector
Investigators from the private sector
Investigators from not-for-profit organization

Transfer

Possible Access to Data Possible Access to Biosamples
Can leave the study facility
Can leave the country

Anonymization, encryption using a secure tunnel file transfer protocol and with no attempt to re-identify the subjects. Transfer must also respect the policies of PHRI, and the protocol and informed consents of subjects.

Cost

Possible Access to Data Variable Cost
Possible Access to Biosamples N/A

Cost reduction for co-analyses

Possible Access to Data
Possible Access to Biosamples

Supplementary Information

Data will be shared for purposes of a defined research project which will acknowledged the source of data and include owners of data in any publication as per a formal Access Agreement.

Timeline

Populations

Selection Criteria
Sex
Women
Pregnant Women
  • Second trimester
  • Third trimester
Newborns
Twins
Countries
  • Canada
Territory
Hamilton and Burlington
Ethnic Origin
Health Status
Other Criteria
Women were recruited between 21 to 39 weeks of pregnancy

Recruitment

Sources of recruitment
  • Specific population
Specific Population
  • Clinic patients
Supplementary Information
Recruitment occurred at physician offices and ultrasound clinics of 3 hospitals in Hamilton and Burlington (Hamilton Health Sciences, St Joseph's Health Center, and Joseph Brant Memorial Hospital in Burlington)

Number of Participants

Number of Participants
857
Number of Participants with Biological Samples
857
Data Collection Events
# Name Description Start End
0 FAMILY - Mothers - 21-39 weeks of pregnancy

Data collection took place at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2004 2009
1 FAMILY - Mothers - Birth

Details of the pregnancy history and perinatal course were recorded from the medical chart.

2004 2009
2 FAMILY - Mothers - 1 year

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2005 2010
3 FAMILY - Mothers - 2 years

Data collection occurred at study visits through questionnaires.

Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household ...

2006 2011
4 FAMILY - Mothers - 5 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2009 2014
5 FAMILY - Mothers - 7-8 years

Data collection occurred at study visits through questionnaires.

Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household ...

2011 2017
6 FAMILY - Mothers - 10 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2014 2019
Selection Criteria
Newborns
Twins
Countries
  • Canada
Territory
Hamilton and Burlington
Ethnic Origin
Health Status

Recruitment

Sources of recruitment
  • Specific population
Specific Population
  • Other specific population : Partners of the women included in the study.

Number of Participants

Number of Participants
530
Number of Participants with Biological Samples
530
Data Collection Events
# Name Description Start End
0 FAMILY - Fathers - 21-39 weeks of pregnancy

Data collection occurred at study visits through questionnaires and physical measurements.

Information about demographics, family health history, ethnicity, socioeconomic status (family ...

2004 2009
1 FAMILY - Fathers - 1 year

Data collection occurred at study visits through questionnaires.

Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household ...

2005 2010
2 FAMILY - Fathers - 2 years

Data collection occurred at study visits through questionnaires.

Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household ...

2006 2011
3 FAMILY - Fathers - 5 years

Data collection occurred at study visits through questionnaires and physical measurements.

Information about demographics, family health history, ethnicity, socioeconomic status (family ...

2009 2014
4 FAMILY - Fathers - 7-8 years

Data collection occurred at study visits through questionnaires.

Information about demographics, family health history, ethnicity, socioeconomic status (family size, education, household ...

2011 2017
5 FAMILY - Fathers - 10 years

Data collection occurred at study visits through questionnaires and physical measurements.

Information about demographics, family health history, ethnicity, socioeconomic status (family ...

2014 2019
Selection Criteria
Newborns
Twins
Countries
  • Canada
Territory
Hamilton and Burlington
Ethnic Origin
Health Status

Recruitment

Sources of recruitment
  • Specific population
Specific Population
  • Other specific population : Babies of the pregnant women already included in the study.

Number of Participants

Number of Participants
901
Number of Participants with Biological Samples
683
Data Collection Events
# Name Description Start End
0 FAMILY - Children - Birth

Data collection occurred at study visits through questionnaires, CRFs, physical measurements and laboratory analysis of biological samples.

Information on demographics and infant ...

2004 2009
1 FAMILY - Children - 6 months

Data collection occurred through questionnaires completed by telephone regarding the infant nutrition, dietary intake and sleep patterns.

Wheezing was observed.

2004 2010
2 FAMILY - Children - 1 year

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2005 2010
3 FAMILY - Children - 2 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2006 2011
4 FAMILY - Children - 3 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2007 2012
5 FAMILY - Children - 5 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2009 2014
6 FAMILY - Children - 7-8 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2011 2017
7 FAMILY - Children - 10 years

Data collection occurred at study visits through questionnaires, physical measurements and laboratory analysis of biological samples.

Information about demographics, family health ...

2014 2019
Selection Criteria
Maximum age
18
Newborns
Twins
Countries
  • Canada
Territory
Hamilton and Burlington
Ethnic Origin
Health Status

Recruitment

Sources of recruitment
  • Specific population
Specific Population
  • Other specific population : Older full siblings of the children included in the study.

Number of Participants

Number of Participants
264
Number of Participants with Biological Samples
264
Data Collection Events
# Name Description Start End
0 FAMILY - Siblings - 21-39 weeks of pregnancy

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2004 2009
1 FAMILY - Siblings - 5 years

Data collection occurred at study visits through questionnaires, physical measurements and laboratory analysis of biological samples.

Information about demographics, family health ...

2009 2014
2 FAMILY - Siblings - 7-8 years

Data collection occurred at study visits through questionnaires, physical measurements, and laboratory analysis of biological samples.

Information about demographics, family health ...

2011 2017
3 FAMILY - Siblings - 10 years

Data collection occurred at study visits through questionnaires, physical measurements and laboratory analysis of biological samples.

Information about demographics, family health ...

2014 2019

Classifications

Socio-demographic and economic characteristics
Lifestyle and behaviours
Birth, pregnancy and reproductive health history
Perception of health, quality of life, development and functional limitations
Diseases
Symptoms and signs
Medication and supplements
Non-pharmacological interventions
Health and community care services utilization
Death
Physical measures and assessments
Laboratory measures
Cognition, personality and psychological measures and assessments
Life events, life plans, beliefs and values
Preschool, school and work life
Social environment and relationships
Physical environment
Administrative information
Cognitive functioning
Personality
Psychological distress and emotions
Other psychological measures and assessments
Perception of health
Quality of life
Life course development
Functional limitations
Other perception of health, quality of life and functional limitation-related information
Tobacco
Alcohol
Drugs
Nutrition
Breastfeeding
Physical activity
Sleep
Sexual behaviours and orientation
Technological devices
Misbehaviour and criminality
Other and unspecified lifestyle information

Socio-demographic and economic characteristics

Age/birthdate
Sex/gender
Marital/partner status
Family and household structure
Education
Residence
Birthplace
Citizenship and immigrant status
Ethnicity, race and religion
Language
Labour force and retirement
Income, possessions, and benefits

Lifestyle and behaviours

Tobacco
Alcohol
Nutrition
Breastfeeding
Physical activity
Transportation
Sleep

Birth, pregnancy and reproductive health history

Puberty, menstruation, menopause and andropause
Pregnancy, delivery and birth

Perception of health, quality of life, development and functional limitations

Perception of health
Quality of life
Functional limitations

Diseases

Neoplasms (C00-D48)
Endocrine, nutritional and metabolic diseases (E00-E90)
Mental and behavioural disorders (F00-F99)
Diseases of the nervous system (G00-G99)
Diseases of the circulatory system (I00-I99)
Diseases of the respiratory system (J00-J99)
Diseases of the digestive system (K00-K93)
Diseases of the skin and subcutaneous tissue (L00-L99)
Diseases of the musculoskeletal system and connective tissue (M00-M99)
Diseases of the genitourinary system (N00-N99)
Pregnancy, childbirth and the puerperium (O00-O9A)
Certain conditions originating in the perinatal period (P00-P96)
Injury, poisoning and certain other consequences of external causes (S00-T98)
Diseases without precise specification or falling into multiple categories

Symptoms and signs

Symptoms and signs involving the circulatory and respiratory systems (R00-R09)
Symptoms and signs involving the skin and subcutaneous tissue (R20-R23)
General symptoms and signs (R50-R69)

Medication and supplements

Medication and supplement intake
Posology and protocol of administration

Non-pharmacological interventions

Surgical interventions
Radiological interventions
Educational and health promotion interventions
Other and unspecified non-pharmacological interventions

Health and community care services utilization

Visits to health professionals
Hospitalizations

Physical measures and assessments

Anthropometry
Circulation and respiration
Muscles, skeleton and mobility
Skin and subcutaneous tissue
Other physical measures and assessments

Laboratory measures

Hematology
Biochemistry
Histology

Cognition, personality and psychological measures and assessments

Psychological distress and emotions

Life events, life plans, beliefs and values

Life events

Preschool, school and work life

Preschool life
School life
Work life

Social environment and relationships

Social participation

Physical environment

Workplace characteristics
Chemical exposure
Biological exposure

Administrative information

Identifiers
Date and time-related information
Questionnaire and interview-related information
Physical and cognitive measure and biosample-related information
Other administrative information

Psychological distress and emotions

Mood and Feelings Questionnaire

Quality of life

KIDSCREEN Generic Health-Related Quality of Life Questionnaire

Nutrition

Food Frequency Questionnaire (different forms)

Physical activity

Habitual Activity Estimation Scale

Sleep

Pittsburgh Sleep Quality Index