Maelstrom Research Staging | MSCDR_Data

MSCDR_Data_Capture

Networks -

Variables -

Associated study MSCDR Contingency Table

Population

MSCDR population

The population is composed of patients seen for clinical evaluation of MS at the HSC MS Clinic, regardless of diagnosis.

Selection Criteria

Newborns

Twins

Countries

Canada

Territory

Ethnic Origin

Health Status

Other Criteria

Patients are included in the database without the regard to race, sex, socioeconomic status, or pregnancy status

Recruitment

Sources of recruitment

Specific population

Specific Population

Clinic patients

Supplementary Information

Patients are recruited from the Multiple Sclerosis Clinic at the Health Sciences Centre in Manitoba, Canada.

Number of Participants

Number of Participants: No Limit
Number of Participants with Biological Samples
Supplementary Information about selection criteria: Approximately 2000 participants are evaluated from the database every 12 months as part of routine clinical care.

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Data Collection Event

MSCDR - Data Capture

General demographic information (including employment status), medical/ surgical history, and health behaviours (e.g. smoking, family history, and social history) are assessed through questionnaires.

Neurologic examinations are performed. Cognitive measures of disability progression include the Timed 25-Foot Walk, Nine Hole Peg Test, and Processing Speed Test.

Information is collected from electronic medical records about multiple sclerosis (age/year of diagnosis and symptom onset, diagnostic testing, clinical course), use of MS-specific drug therapies, comorbidities, quality of life, functional status (Activities of Daily Living and Instrumental Activities of Daily Living), employment status, and disability progression (Expanded Disability Status Scale).

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Collected Dataset / MSCDR_Data_Capture

MSCDR_Data_Capture

Population

MSCDR population

Data Collection Event

MSCDR - Data Capture

Files

Variables Classifications