Manitoba Multiple Sclerosis Clinic Database and Registry
- Start Year
- 2010
| Investigators | Contacts |
|---|---|
|
|
Design
- Study design
- Registry
- Follow Up
- Participants are followed once 12 months after their first visit.
Recruitment
- Recruitment Target
-
- Individuals
Number of Participants
- Number of Participants
- No Limit
- Number of Participants with Biological Samples
- Supplementary Information
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
Supplementary Information
Timeline
MSCDR population
Selection Criteria
- Newborns
- Twins
- Countries
-
- Canada
- Territory
- Ethnic Origin
-
- Health Status
-
- Other Criteria
-
Patients are included in the database without the regard to race, sex, socioeconomic status, or pregnancy status
Recruitment
- Sources of recruitment
-
- Specific population
- Specific Population
-
- Clinic patients
- Supplementary Information
-
Patients are recruited from the Multiple Sclerosis Clinic at the Health Sciences Centre in Manitoba, Canada.
Number of Participants
- Number of Participants
- No Limit
- Number of Participants with Biological Samples
- Supplementary Information about selection criteria
-
Approximately 2000 participants are evaluated from the database every 12 months as part of routine clinical care.
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
MSCDR - Data Capture
|
General demographic information (including employment status), medical/ surgical history, and health behaviours (e.g. smoking, family history, and social history) are assessed through ... |
2010 | |
| 1 |
MSCDR - Follow-up 12 months
|
Use of MS-specific drug therapies, comorbidities, functional status, employment status, and disability progression (Expanded Disability Status Scale) are assessed through questionnaires for a ... |
2011 |
Classifications
- Socio-demographic and economic characteristics
- Lifestyle and behaviours
- Birth, pregnancy and reproductive health history
- Perception of health, quality of life, development and functional limitations
- Diseases
- Symptoms and signs
- Medication and supplements
- Non-pharmacological interventions
- Health and community care services utilization
- Death
- Physical measures and assessments
- Laboratory measures
- Cognition, personality and psychological measures and assessments
- Life events, life plans, beliefs and values
- Preschool, school and work life
- Social environment and relationships
- Physical environment
- Administrative information
- Cognitive functioning
- Personality
- Psychological distress and emotions
- Other psychological measures and assessments
- Perception of health
- Quality of life
- Life course development
- Functional limitations
- Other perception of health, quality of life and functional limitation-related information
Socio-demographic and economic characteristics
Lifestyle and behaviours
Perception of health, quality of life, development and functional limitations
Diseases
Medication and supplements
Non-pharmacological interventions
Physical measures and assessments
Cognition, personality and psychological measures and assessments
Life events, life plans, beliefs and values
Social environment and relationships
Administrative information
Cognitive functioning
Psychological distress and emotions
Quality of life
Functional limitations