Individual Study / SMC

Swedish Mammography Cohort

Swedish Mammography Cohort

SMC logo
Networks -
Datasets -
Variables -
Start Year
1987
Visit SMC

Members

Download
Investigators Contacts
  • Prof. Karl Michaëlsson
    Uppsala University
  • Prof. Karl Michaëlsson
    Uppsala University
  • Dr. Anna-Karin Kolseth
    Uppsala University

Design

Study design
Cohort
Follow Up
After baseline, participants were followed-up three times for updated exposure information, in 1997, 2008 and 2009.
Information on health status is updated every year by linkage to registries.
Supplementary Information

Marker Paper

Harris H, Håkansson N, Olofsson C, Stackelberg O, Julin B, Åkesson A, et al. The Swedish mammography cohort and the cohort of Swedish men: study design and characteristics of two population-based longitudinal cohorts. OA Epidemiology 2013 Oct 01;1(2):16.

Recruitment

Recruitment Target
  • Individuals

Number of Participants

Number of Participants
66,651
Number of Participants with Biological Samples
14,904
Supplementary Information
Saliva sample: 8744 participants
Clinical subcohort samples (Cycle 1): 6231 participants
Clinical subcohort samples (Cycle 2): ~400 (June 2016; ongoing)

Access

Availability of data and biosamples

Possible Access to Data
Possible Access to Biosamples
Other

Timeline

SMC population

Selection Criteria
Sex
Women
Minimum age
39
Maximum age
76
Newborns
Twins
Countries
  • Sweden
Territory
Uppsala and Västmanland Counties (central Sweden)
Ethnic Origin
Health Status

Recruitment

Sources of recruitment
  • General population
General Population
  • Selected sample
Supplementary Information
All women born between 1914 and 1948 were invited to participate.

Number of Participants

Number of Participants
66,651
Number of Participants with Biological Samples
14,904
Supplementary Information about selection criteria
1987: 66 651 participants
1997: 39 227 participants
2008: 30 621 participants
2009: 25 332 participants
Saliva sample: 8744 participants
Clinical subcohort samples (Cycle 1): 6,231 participants
Clinical subcohort samples (Cycle 2): ~400 participants (June 2016; ongoing)
Data Collection Events
# Name Description Start End
0 SMC - 1987 (baseline)

The questionnaire was sent by mail and included information on diet and alcohol intake, parity, age at first birth, family history of breast cancer, weight, height, education level and marital ...

1987-03 1990-12
1 SMC - Registries

Information from health registries is updated every year (1-2 years delay).

Incident cases of cancer were ascertained by record linkages of the study population with the National Swedish ...

1987-03 2016-12
2 SMC - 1997 (2nd follow-up)

The second questionnaire collected information on diet and alcohol intake, dietary supplements, family history of cancer and myocardial infarction, age at menarche, history of oral ...

1997-09 1997-12
3 SMC - Clinical exmination (Cycle 1, recruitment 1)

Participants from Uppsala were invited to participate in a health examination including measures of height, weight, waist and hip circumferences, blood pressure and a DXA scan. Additional ...

2003-09 2009-09
4 SMC - Saliva Saliva was collected at different time points between 2005 and 2008. 2005-01 2008-12
5 SMC - 2008 (3rd (a) follow-up)

The 2008 questionnaire collected information including general health status, disease diagnoses, current body weight, height, waist and hip circumferences, dental health, medication use, sleep ...

2008-09 2008-12
6 SMC - 2009 (3rd (b) follow-up)

The fourth questionnaire collected information on diet and alcohol intake, dietary supplements, smoking, physical activity and sun habits.

2009-04 2009-12
7 SMC - Clinical examination (Cycle 1, recruitment 2)

In a second recruitment round, additional SMC participants were invited for inclusion in the clinical subcohort. As in recruitment 1, the women took part in a health examination including ...

2010-04 2015-09
8 SMC - Clinical examination (Cycle 2)

Women who participated in the first SMC clinical subcohort in 2003-2009 are currently recruited for repeated collection of biological samples and clinical measurements.

The women take ...

2015-10 2016-12

Classifications

Socio-demographic and economic characteristics
Lifestyle and behaviours
Birth, pregnancy and reproductive health history
Perception of health, quality of life, development and functional limitations
Diseases
Symptoms and signs
Medication and supplements
Non-pharmacological interventions
Health and community care services utilization
Death
Physical measures and assessments
Laboratory measures
Cognition, personality and psychological measures and assessments
Life events, life plans, beliefs and values
Preschool, school and work life
Social environment and relationships
Physical environment
Administrative information
Perception of health
Quality of life
Life course development
Functional limitations
Other perception of health, quality of life and functional limitation-related information
Tobacco
Alcohol
Drugs
Nutrition
Breastfeeding
Physical activity
Sleep
Sexual behaviours and orientation
Technological devices
Misbehaviour and criminality
Other and unspecified lifestyle information

Socio-demographic and economic characteristics

Age/birthdate
Twin
Marital/partner status
Family and household structure
Education
Residence
Labour force and retirement

Lifestyle and behaviours

Tobacco
Alcohol
Nutrition
Physical activity
Sleep
Leisure activities
Other and unspecified lifestyle information

Birth, pregnancy and reproductive health history

Puberty, menstruation, menopause and andropause
Contraception
Pregnancy, delivery and birth
Fertility and sexual health

Perception of health, quality of life, development and functional limitations

Perception of health
Quality of life
Use of assistive devices

Diseases

Neoplasms (C00-D48)
Endocrine, nutritional and metabolic diseases (E00-E90)
Mental and behavioural disorders (F00-F99)
Diseases of the nervous system (G00-G99)
Diseases of the eye and adnexa (H00-H59)
Diseases of the ear and mastoid process (H60-H95)
Diseases of the circulatory system (I00-I99)
Diseases of the respiratory system (J00-J99)
Diseases of the digestive system (K00-K93)
Diseases of the skin and subcutaneous tissue (L00-L99)
Diseases of the musculoskeletal system and connective tissue (M00-M99)
Diseases of the genitourinary system (N00-N99)
Certain conditions originating in the perinatal period (P00-P96)
Injury, poisoning and certain other consequences of external causes (S00-T98)
Diseases without precise specification or falling into multiple categories

Symptoms and signs

Symptoms and signs involving the circulatory and respiratory systems (R00-R09)
Symptoms and signs involving the digestive system and abdomen (R10-R19)
Symptoms and signs involving the urinary system (R30-R39)
Symptoms and signs involving cognition, perception, emotional state and behaviour (R40-R46)
General symptoms and signs (R50-R69)

Medication and supplements

Medication and supplement intake
Other and unspecified pharmacological interventions

Non-pharmacological interventions

Surgical interventions
Other and unspecified non-pharmacological interventions

Health and community care services utilization

Visits to health professionals

Death

Vital status

Physical measures and assessments

Physical characteristics
Anthropometry
Circulation and respiration

Cognition, personality and psychological measures and assessments

Psychological distress and emotions
Other psychological measures and assessments

Preschool, school and work life

Work life

Social environment and relationships

Social participation
Social support
Other social environment characteristics

Physical environment

Built environment/neighbourhood characteristics
Radiation exposure

Administrative information

Identifiers
Questionnaire and interview-related information
Other administrative information

Quality of life

WHO Well-Being Index

Nutrition

Food Frequency Questionnaire (different forms)