The Passive Surveillance Stroke Severity Score Study
Networks
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Datasets
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Variables
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The External Validation of the Passive Surveillance Stroke Severity (PaSSV) Score is an sdministrative data based cohort of patients hospitalized for stroke, where entry to hospital was through ED.
The objectives of the External Validation of the Passive Surveillance Stroke Severity (PaSSV) Score study are:
* To assess the feasibility of deriving the PaSSV score using administrative data from British Columbia, Alberta, and Nova Scotia.
* To assess the association between the PaSSV score and 30-day all-cause mortality in British Columbia, Alberta, and Nova Scotia (geographic external validity), as well as in Ontario (temporal external validity).
* To compare the predictive values of models with and without PaSSV score for 30-day mortality and secondary outcomes (all-cause mortality and admission to nursing home within one year).
* To evaluate whether adding the PaSSV score changes hospital ranking in Ontario for 30-day mortality.
- Start Year
- 2009
- End Year
- 2020
| Investigators | Contacts |
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Design
- Study design
- Cohort
- Follow Up
- Participants are followed up within 30-days and 1-year after their hospital admission.
Marker Paper
Yu AYX, Austin PC, Park AL, Fang J, et al. Validation of the Passive Surveillance Stroke Severity Score in Three Canadian Provinces. Can J Neurol Sci. 2025 Jan;52(1):53-58. doi: 10.1017/cjn.2024.36. Epub 2024 Mar 6.
PUBMED 38443764
Recruitment
- Recruitment Target
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- Individuals
Number of Participants
- Number of Participants
- 86,142
- Number of Participants with Biological Samples
- Supplementary Information
- * Ontario: 65,082 participants * British Columbia: 18,387 participants * Nova Scotia: 2,673 participants
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
Availability of access information
By contacting the study representative
Sector of research
| Possible Access to Data | Possible Access to Biosamples | |
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| Investigators from the public sector | ||
| Investigators from the private sector | ||
| Investigators from not-for-profit organization |
Transfer
| Possible Access to Data | Possible Access to Biosamples | |
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| Can leave the study facility | ||
| Can leave the country |
Cost
| Possible Access to Data | Fixed Cost |
| Possible Access to Biosamples | N/A |
Data Access Support Hub (DASH) does not hold any data. Rather, DASH helps researchers access data held by data centres and repositories that are members of Health Data Research Network Canada (HDRN Canada). Here’s how academic researchers can access multi-regional health and health-related data, https://www.hdrn.ca/en/dash/about-dash/how-dash-works/
Cost reduction for co-analyses
| Possible Access to Data | |
| Possible Access to Biosamples |
Timeline
PaSSV population
The population is composed of patients hospitalized with ischemic stroke and intracerebral hemorrhage in British Columbia, Ontario, and Nova Scotia who have valid health card numbers in these provinces.
Selection Criteria
- Minimum age
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18
- Maximum age
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105
- Newborns
- Twins
- Countries
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- Canada
- Ethnic Origin
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- Health Status
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- Patients admitted to hospital with ischemic stroke (H34.1, I63, I64) or intracerebral hemorrhage (I61) in the most responsible diagnosis position in the DAD3.
- Other Criteria
Recruitment
- Sources of recruitment
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- Specific population
- Specific Population
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- Clinic patients
- Supplementary Information
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Participants are identified through the DAD (Discharge Abstract Database), NACRS (National Ambulatory Care Reporting System), OHIP (Ontario Health Insurance Plan) health databases.
Number of Participants
- Number of Participants
- 86,142
- Number of Participants with Biological Samples
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
PaSSV - Retrospective data
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Patient's disease burden based on the presence of comorbid conditions is assessed through the Charlson comorbidity index collected from the Discharge Abstract Database (DAD). | 2009-04 | 2014-04 |
| 1 |
PaSSV - Observation window
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Sociodemographic information such as sex, and age are gathered. Information from the hospitalization, ED visit(s) leading to the hospitalization and associated physician claims are collected and a ... | 2014-04 | 2020-03 |
Classifications
- Socio-demographic and economic characteristics
- Lifestyle and behaviours
- Birth, pregnancy and reproductive health history
- Perception of health, quality of life, development and functional limitations
- Diseases
- Symptoms and signs
- Medication and supplements
- Non-pharmacological interventions
- Health and community care services utilization
- Death
- Physical measures and assessments
- Laboratory measures
- Cognition, personality and psychological measures and assessments
- Life events, life plans, beliefs and values
- Preschool, school and work life
- Social environment and relationships
- Physical environment
- Administrative information
Socio-demographic and economic characteristics
Age/birthdate
Sex/gender
Residence
Diseases
Diseases of the eye and adnexa (H00-H59)
Diseases of the circulatory system (I00-I99)
External causes of morbidity and mortality (V01-Y98)
Symptoms and signs
Symptoms and signs involving the skin and subcutaneous tissue (R20-R23)
Symptoms and signs involving nervous and musculoskeletal systems (R25-R29)
Symptoms and signs involving cognition, perception, emotional state and behaviour (R40-R46)
Symptoms and signs involving speech and voice (R47-R49)
Non-pharmacological interventions
Other and unspecified non-pharmacological interventions
Health and community care services utilization
Visits to health professionals
Hospitalizations
Community and social care
Death
Cause of death
Other end of life or death-related information
Administrative information
Other administrative information