Johns Hopkins Precision Medicine Center of Excellence for Multiple Sclerosis
- Start Year
- 2017
Visit JHMS
| Investigators | Contacts |
|---|---|
|
|
Design
- Study design
- Registry
- Follow Up
- Participants are followed biannually.
Recruitment
- Recruitment Target
-
- Individuals
Number of Participants
- Number of Participants
- 1,213
- Number of Participants with Biological Samples
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
Timeline
JHMS population
Selection Criteria
- Minimum age
-
18
- Maximum age
-
65
- Newborns
- Twins
- Countries
-
- United States of America
- Ethnic Origin
-
- Health Status
-
- Participants must be diagnosed with relapsing-remitting multiple sclerosis, progressive multiple sclerosis or clinically isolated syndrome.
Recruitment
- Sources of recruitment
-
- Specific population
- Specific Population
-
- Clinic patients
Number of Participants
- Number of Participants
- 1,213
- Number of Participants with Biological Samples
Data Collection Events
| # | Name | Description | Start | End |
|---|---|---|---|---|
| 0 |
JHMS - Enrollment
|
Clinical information, demographic data and general medical history is collected from questionnaires. Optical coherence tomography imaging is performed to obtain peripapillary and ... |
2017-03 | |
| 1 |
JHMS - Follow-up 1
|
Clinical information, demographic data and general medical history is collected from questionnaires. Optical coherence tomography imaging is performed to obtain peripapillary ... |
2017-09 | 2018-02 |
| 2 |
JHMS - Follow-up 2
|
Clinical information, demographic data and general medical history is collected from questionnaires. Optical coherence tomography imaging is performed to obtain peripapillary ... |
2018-03 | 2018-08 |
| 3 |
JHMS - Follow-up 3
|
Clinical information, demographic data and general medical history is collected from questionnaires. Optical coherence tomography imaging is performed to obtain peripapillary ... |
2018-09 | 2019-02 |
| 4 |
JHMS - Follow-up 4
|
Clinical information, demographic data and general medical history is collected from questionnaires. Optical coherence tomography imaging is performed to obtain peripapillary ... |
2019-03 | 2019-08 |
| 5 |
JHMS - Follow-up 5
|
Clinical information, demographic data and general medical history is collected from questionnaires. Optical coherence tomography imaging is performed to obtain peripapillary ... |
2019-09 |
Classifications
- Socio-demographic and economic characteristics
- Lifestyle and behaviours
- Birth, pregnancy and reproductive health history
- Perception of health, quality of life, development and functional limitations
- Diseases
- Symptoms and signs
- Medication and supplements
- Non-pharmacological interventions
- Health and community care services utilization
- Death
- Physical measures and assessments
- Laboratory measures
- Cognition, personality and psychological measures and assessments
- Life events, life plans, beliefs and values
- Preschool, school and work life
- Social environment and relationships
- Physical environment
- Administrative information
- Cognitive functioning
- Personality
- Psychological distress and emotions
- Other psychological measures and assessments
- Perception of health
- Quality of life
- Life course development
- Functional limitations
- Other perception of health, quality of life and functional limitation-related information
Socio-demographic and economic characteristics
Lifestyle and behaviours
Perception of health, quality of life, development and functional limitations
Diseases
Medication and supplements
Death
Physical measures and assessments
Laboratory measures
Cognition, personality and psychological measures and assessments
Physical environment
Administrative information
Cognitive functioning
Quality of life
Functional limitations