Individual Study / CCRS

The Continuing Care Reporting System

The Continuing Care Reporting System

Networks -
Datasets -
Variables -
Start Year
1973
Supplementary Information
The Continuing Care Reporting System (CCRS), launched between 2003 and 2004 and contains information from 1973.
Visit CCRS

Members

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Investigators Contacts
  • Canadian Institute for Health Information
    CIHI

Design

Study design
Registry
Follow Up
Participant information is updated every time they access hospital-based or residential-based continuing care facilities.
Supplementary Information

Marker Paper

Recruitment

Recruitment Target
  • Individuals

Number of Participants

Number of Participants
No Limit
Number of Participants with Biological Samples

Access

Availability of data and biosamples

Possible Access to Data
Possible Access to Biosamples
Other

Timeline

CCRS population

Selection Criteria
Newborns
Twins
Countries
  • Canada
Territory
Ethnic Origin
Health Status
Other Criteria
Participants are admitted to, assessed in or discharged from hospital-based or residential-based continuing care facilities.

Recruitment

Sources of recruitment
  • Specific population
Specific Population
  • Clinic patients
Supplementary Information
Registry participants are selected by default when they access hospitals with continuing care beds (extended, auxiliary, chronic or complex care beds) or residential care facilities (nursing homes, personal care homes or long-term care facilities).

Number of Participants

Number of Participants
No Limit
Number of Participants with Biological Samples
Data Collection Events
# Name Description Start End
0 CCRS - Health Service Utilization Information is collected about assessment, admission, and separation dates, facility information (personal care, respite care, chronic care, acute care), and medical diagnoses. 1973 2021
1 CCRS - Health Assessments Information is collected about demographics, cognitive function, vision, psychosocial well-being, continence, health conditions, treatments and procedures, communication and hearing abilities, ... 2011 2021

Classifications

Socio-demographic and economic characteristics
Lifestyle and behaviours
Birth, pregnancy and reproductive health history
Perception of health, quality of life, development and functional limitations
Diseases
Symptoms and signs
Medication and supplements
Non-pharmacological interventions
Health and community care services utilization
Death
Physical measures and assessments
Laboratory measures
Cognition, personality and psychological measures and assessments
Life events, life plans, beliefs and values
Preschool, school and work life
Social environment and relationships
Physical environment
Administrative information
Cognitive functioning
Personality
Psychological distress and emotions
Other psychological measures and assessments
Perception of health
Quality of life
Life course development
Functional limitations
Other perception of health, quality of life and functional limitation-related information
Social network
Social participation
Social support
Parenting and familial environment
Other social environment characteristics

Socio-demographic and economic characteristics

Age/birthdate
Sex/gender
Marital/partner status
Family and household structure
Education
Residence
Ethnicity, race and religion
Language
Labour force and retirement
Income, possessions, and benefits

Lifestyle and behaviours

Tobacco
Alcohol
Nutrition
Personal hygiene
Sleep
Leisure activities
Other and unspecified lifestyle information

Perception of health, quality of life, development and functional limitations

Perception of health
Functional limitations
Use of assistive devices

Diseases

Certain infectious and parasitic diseases (A00-B99)
Neoplasms (C00-D48)
Diseases of the blood and blood-forming organs and certain disorders involving the immune mechanism (D50-D89)
Endocrine, nutritional and metabolic diseases (E00-E90)
Mental and behavioural disorders (F00-F99)
Diseases of the nervous system (G00-G99)
Diseases of the eye and adnexa (H00-H59)
Diseases of the ear and mastoid process (H60-H95)
Diseases of the circulatory system (I00-I99)
Diseases of the respiratory system (J00-J99)
Diseases of the digestive system (K00-K93)
Diseases of the skin and subcutaneous tissue (L00-L99)
Diseases of the musculoskeletal system and connective tissue (M00-M99)
Diseases of the genitourinary system (N00-N99)
Congenital malformations, deformations and chromosomal abnormalities (Q00-Q99)
Injury, poisoning and certain other consequences of external causes (S00-T98)
External causes of morbidity and mortality (V01-Y98)
Diseases without precise specification or falling into multiple categories

Symptoms and signs

Symptoms and signs involving the circulatory and respiratory systems (R00-R09)
Symptoms and signs involving the digestive system and abdomen (R10-R19)
Symptoms and signs involving nervous and musculoskeletal systems (R25-R29)
Symptoms and signs involving the urinary system (R30-R39)
Symptoms and signs involving cognition, perception, emotional state and behaviour (R40-R46)
Symptoms and signs involving speech and voice (R47-R49)
General symptoms and signs (R50-R69)
Symptoms related to multiple categories

Medication and supplements

Medication and supplement intake

Non-pharmacological interventions

Surgical interventions
Radiological interventions
Physical therapy interventions
Cognitive, psychological and sensory interventions
Educational and health promotion interventions
Laboratory diagnosis interventions
Other and unspecified non-pharmacological interventions

Health and community care services utilization

Visits to health professionals
Hospitalizations
Community and social care
Other health and community care

Death

Other end of life or death-related information

Physical measures and assessments

Anthropometry
Muscles, skeleton and mobility

Cognition, personality and psychological measures and assessments

Cognitive functioning
Personality
Psychological distress and emotions

Life events, life plans, beliefs and values

Life events
Beliefs and values

Social environment and relationships

Social participation
Social support
Other social environment characteristics

Administrative information

Identifiers
Date and time-related information
Data and sample collection center-related information
Other administrative information

Cognitive functioning

Cognitive Performance Scale

Personality

Aggressive Behaviour Scale

Psychological distress and emotions

Hamilton Depression Rating Scale

Functional limitations

Activities of Daily Living

Social participation

Revised Index of Social Engagement