Maelstrom Research Staging | SSCS_SLE

SSCS_SLE_Followup 4

Networks -

Variables -

Associated study SSCS Contingency Table

Population

SSCS - SLE

The population is composed of adult patients with systemic lupus erythematosus from 8 different Swiss hospitals.

Selection Criteria

Minimum age

Newborns

Twins

Countries

Switzerland

Territory

Basel, Bern, Geneva, Vaud, Schaffhausen, St. Gallen, Valais, Zürich

Ethnic Origin

Health Status

Diagnosed systemic lupus erythematosus

Recruitment

Sources of recruitment

Specific population

Specific Population

Clinic patients

Supplementary Information

Patients included originated from Clinical Immunology, Internal Medicine, Nephrology, and Rheumatology tertiary centres located in the French-speaking and the German-speaking regions of Switzerland.

Number of Participants

Number of Participants: 879
Number of Participants with Biological Samples: 879

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Data Collection Event

SSCS - SLE - Follow-up 4

Information about health data (demographics, disease characteristics, disease activity, treatment, lifestyle, treatment adherence), patient-reported outcomes (using SF-36, Fatigue Assessment Scale), Systemic Lupus Erythematosus Disease Activity Index (SLEDAI) score with the Safety of Estrogens in Lupus Erythematosus National Assessment (SELENA) modification (SELENA-SLEDAI), Physician's Global Assessment (PGA), the Systemic Lupus International Collaborating Clinics/American College of Rheumatology (SLICC/ACR) Damage index from SLE (SDI) was collected. Blood and urine samples were collected.

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Collected Dataset / SSCS_SLE_Followup 4

SSCS_SLE_Followup 4

Population

SSCS - SLE

Data Collection Event

SSCS - SLE - Follow-up 4

Files

Variables Classifications