Maelstrom Research Staging | SIBDCS_Followup

SIBDCS_Followup_2020

Networks -

Variables -

Associated study SIBDCS Contingency Table

Population

SIBDCS population

The population is composed of patients of all ages affected with inflammatory bowel diseases: Crohn disease, ulcerative colitis or indeterminate colitis, and who have a permanent residence status in Switzerland or have contracted Swiss health insurance and is treated on a regular basis for these diseases in Switzerland.

Selection Criteria

Newborns

Twins

Countries

Switzerland

Territory

Ethnic Origin

Health Status

Diagnosed with Crohn disease, ulcerative colitis or indeterminate colitis at least 2 months prior to inclusion or have had at least one recurrence of the symptoms.

Other Criteria

Participants are included if they have a permanent residence status in Switzerland or have contracted Swiss health insurance and is treated on a regular basis in Switzerland.
Participants are excluded if they have other form of colitis such as infectious colitis (positive culture or parasite search), ischemic colitis, radiation colitis, microscopic colitis, urogenital ulcer (Behçet's disease), eosinophilic enteritis (oeso-gastro or enteritis).

Recruitment

Sources of recruitment

Specific population

Specific Population

Clinic patients

Supplementary Information

Recruitment first began in the six major inflammatory bowel disease centres of the university-based tertiary hospitals. Recruitment is fostered by providing information about the study and contacting gastroenterologists by mail or through informational meetings, either in regional or canton hospitals or in private practices. Recruitment of inflammatory bowel disease patients is carried out by their gastroenterologist, either during a routine visit or by mail invitation and is opened to any gastroenterologist practicing in Switzerland. A further channel of information about the study exists through patient organizations, so that patients can be recruited independently, for example those who have been in remission for a long time and who do not currently require any medical attention.

Number of Participants

Number of Participants: 4,300
Number of Participants with Biological Samples: 2,700
Supplementary Information about selection criteria

More info

Data Collection Event

SIBDCS - Follow-up 2020

Clinical disease activity, drug therapies, drug adverse events and surgery data, new exams and findings, complications (extraintestinal manifestations, fistula/abscess, stenosis), and hospitalizations were collected from through the physician's questionnaire. Socioeconomic data (education, occupation); smoking status; quality of life and mood were collected through patient's questionnaire. Information about diagnosis and clinical disease activity; smoking habits and surgery was collected from the physician's and the patient's questionnaire. Blood and biopsy samples were collected.

More info

Collected Dataset / SIBDCS_Followup_2020

SIBDCS_Followup_2020

Population

SIBDCS population

Data Collection Event

SIBDCS - Follow-up 2020

Files

Variables Classifications