Maelstrom Research Staging | SIBDCS

SIBDCS_Baseline

Networks -

Variables -

Associated study SIBDCS Contingency Table

Population

SIBDCS population

The population is composed of patients of all ages affected with inflammatory bowel diseases: Crohn disease, ulcerative colitis or indeterminate colitis, and who have a permanent residence status in Switzerland or have contracted Swiss health insurance and is treated on a regular basis for these diseases in Switzerland.

Selection Criteria

Newborns

Twins

Countries

Switzerland

Territory

Ethnic Origin

Health Status

Diagnosed with Crohn disease, ulcerative colitis or indeterminate colitis at least 2 months prior to inclusion or have had at least one recurrence of the symptoms.

Other Criteria

Participants are included if they have a permanent residence status in Switzerland or have contracted Swiss health insurance and is treated on a regular basis in Switzerland.
Participants are excluded if they have other form of colitis such as infectious colitis (positive culture or parasite search), ischemic colitis, radiation colitis, microscopic colitis, urogenital ulcer (Behçet's disease), eosinophilic enteritis (oeso-gastro or enteritis).

Recruitment

Sources of recruitment

Specific population

Specific Population

Clinic patients

Supplementary Information

Recruitment first began in the six major inflammatory bowel disease centres of the university-based tertiary hospitals. Recruitment is fostered by providing information about the study and contacting gastroenterologists by mail or through informational meetings, either in regional or canton hospitals or in private practices. Recruitment of inflammatory bowel disease patients is carried out by their gastroenterologist, either during a routine visit or by mail invitation and is opened to any gastroenterologist practicing in Switzerland. A further channel of information about the study exists through patient organizations, so that patients can be recruited independently, for example those who have been in remission for a long time and who do not currently require any medical attention.

Number of Participants

Number of Participants: 4,300
Number of Participants with Biological Samples: 2,700
Supplementary Information about selection criteria

More info

Data Collection Event

SIBDCS - Baseline

Diagnosis, clinical disease activity, drug therapies, drug adverse events and surgery data; disease location and methods of assessment; disease severity; laboratory values, medical history (TBC vaccination, appendicectomy, coeliac disease, psoriasis), smoking habits, family history of IBD and complications (extraintestinal manifestations, fistulas/abscess, stenosis) were collected through the physician's questionnaire. Demographic data/ethnicity; socioeconomic data (education, occupation); life-habits (sleep, sport, alcohol consumption); diagnosis and diagnosis delays; rheumatological pain; previous medical visits and hospitalizations; exams and rehabilitation clinic stays; quality of life; social environment; stress; mood; and personality were collected through the patient's questionnaire. Blood and biopsy samples were collected.

More info

Collected Dataset / SIBDCS_Baseline

SIBDCS_Baseline

Population

SIBDCS population

Data Collection Event

SIBDCS - Baseline

Files

Variables Classifications