Maelstrom Research Staging | SCQM_axSpA_Pregnancy_registry

SCQM_axSpA_Pregnancy_registry_1month

Networks -

Variables -

Population

SCQM - axSpA

The population is composed of all patients with ankylosing spondylitis (AS) or other forms of spondyloarthritis (SpA) with predominantly axial disease according to the opinion of the treating rheumatologist.

Selection Criteria

Newborns

Twins

Countries

Switzerland

Ethnic Origin

Health Status

Clinical diagnosis or suspicion of ankylosing spondylitis or other forms of spondyloarthritis with predominantly axial

Other Criteria

Recruitment

Sources of recruitment

Specific population

Specific Population

Clinic patients

Supplementary Information

Patients were recruited by 177 rheumatologists in private practice (52% of the patients) as well as from the rheumatology departments at 42 hospitals (including 6 academic centers) from all geographic regions in Switzerland. The inclusion of the rheumatologist and the patients in the study is voluntary.

Number of Participants

Number of Participants: 5,412
Number of Participants with Biological Samples

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Data Collection Event

SCQM - axSpA - Pregnancy registry 1 month postpartum

Information about disease activity, antirheumatic treatment, course of pregnancy, fetal and maternal complications, health issues during pregnancy and delivery was collected. A “history questionnaire” is filled out which included information about health issues during the pregnancy and birth.

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Collected Dataset / SCQM_axSpA_Pregnancy_registry_1month

SCQM_axSpA_Pregnancy_registry_1month

Population

SCQM - axSpA

Data Collection Event

SCQM - axSpA - Pregnancy registry 1 month postpartum

Files

Variables Classifications