Maelstrom Research Staging | ROS_Annual_Followup

ROS_Annual_Followup_visit

Networks -

Variables -

Associated study ROS Contingency Table

Population

ROS - Population

ROS participants are all brothers, sisters, and priests in the Roman Catholic church.

Selection Criteria

Minimum age

Newborns

Twins

Countries

United States of America

Ethnic Origin

Health Status

No dementia diagnosed before baseline

Other Criteria

agree to annual follow-up and donation of brain, spinal cord, muscle and nerve upon death

Recruitment

Sources of recruitment

General population
Specific population

General Population

Volunteer enrolment

Specific Population

Other specific population :
members of religious order communities of the Catholic church

Participants from Existing Studies

Number of Participants

Number of Participants: 1,200
Number of Participants with Biological Samples: 1,200

More info

Data Collection Event

ROS - Annual Follow-up visit

The window for the annual follow up visit is 9 – 16 months from previous visit. Annual follow up data collection event contains cognitive measures, medical history questions, blood pressure, neuro exam, and a visit by the clinician. The Medical history questions bridge the period from previous visit to the current visit. Data collection ends if a participant withdraws from the study or is deceased. We seek to collect brain, spinal cord, muscle and nerve tissue from deceased participants at autopsy.

More info

Collected Dataset / ROS_Annual_Followup_visit

ROS_Annual_Followup_visit

Population

ROS - Population

Data Collection Event

ROS - Annual Follow-up visit

Files

Variables Classifications