Collected Dataset / PeMSDD_Routine_clinical_visits

The population is composed of patients with suspected onset of demyelinating disease of the central nervous system (CNS) prior to age 18 and 21 years of age or younger at the time of recruitment.

Data are collected during routine clinical care of pediatric patients and medical data relating to their demyelinating disease are entered into the database. Information collected is entered into a web-based electronic data capture system.

Information is collected about demographics, including family history, medical history, and vaccinations. History of disease such as medications, blood tests results, other biological samples, MRIs as well as events/relapses inclduing symptoms, localization, disease onset data are also collected.

Data from clinic visits which includes diagnosis, neurostatus expanded disability status scale, and growth are also collected and neuropsychological testing is completed.