Maelstrom Research Staging | NARCOMS_Followup

NARCOMS_Followup_47

Networks -

Variables -

Associated study NARCOMS Contingency Table

Population

NARCOMS population

The population is composed of people 18 years or older, who have been diagnosed with multiple sclerosis.

Selection Criteria

Minimum age

Newborns

Twins

Countries

United States of America

Ethnic Origin

Health Status

Participants diagnosed with multiple sclerosis or clinically isolated syndrome

Recruitment

Sources of recruitment

General population
Specific population

General Population

Volunteer enrolment

Specific Population

Other specific population : Members of the National Multiple Sclerosis Society (NMSS), Consortium of Multiple Sclerosis Centers (CMSC), Paralyzed Veterans of American (PVA), and Eastern Paralyzed Veterans Association (EPVA)

Supplementary Information

Multiple Sclerosis (MS) patients are contacted directly by using mailing lists provided by the various Consortium of Multiple Sclerosis Centers (CMSC), as well as the National Multiple Sclerosis Society (NMSS) mailing list. Potential Registry participants are also reached through publications of the NMSS, Paralyzed Veterans of American (PVA), and Eastern Paralyzed Veterans Association (EPVA). Registry information is available on the CMSC website, and interested individuals can download a copy of the enrollment questionnaire. Many MS support groups also distribute enrollment questionnaires to their members.

Number of Participants

Number of Participants: 42,000
Number of Participants with Biological Samples
Supplementary Information about selection criteria: The number of active participants is over 7,000.

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Data Collection Event

NARCOMS - Follow-up 47

Information was collected to update information on demographics (insurance, employment, disability, etc.), functionality, quality of life, other conditions, providers, relapse and symptom progression, therapies (current), and lifestyle.

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Collected Dataset / NARCOMS_Followup_47

NARCOMS_Followup_47

Population

NARCOMS population

Data Collection Event

NARCOMS - Follow-up 47

Files

Variables Classifications