Maelstrom Research Staging | NARCOMS

NARCOMS_Enrollment

Networks -

Variables -

Associated study NARCOMS Contingency Table

Population

NARCOMS population

The population is composed of people 18 years or older, who have been diagnosed with multiple sclerosis.

Selection Criteria

Minimum age

Newborns

Twins

Countries

United States of America

Ethnic Origin

Health Status

Participants diagnosed with multiple sclerosis or clinically isolated syndrome

Recruitment

Sources of recruitment

General population
Specific population

General Population

Volunteer enrolment

Specific Population

Other specific population : Members of the National Multiple Sclerosis Society (NMSS), Consortium of Multiple Sclerosis Centers (CMSC), Paralyzed Veterans of American (PVA), and Eastern Paralyzed Veterans Association (EPVA)

Supplementary Information

Multiple Sclerosis (MS) patients are contacted directly by using mailing lists provided by the various Consortium of Multiple Sclerosis Centers (CMSC), as well as the National Multiple Sclerosis Society (NMSS) mailing list. Potential Registry participants are also reached through publications of the NMSS, Paralyzed Veterans of American (PVA), and Eastern Paralyzed Veterans Association (EPVA). Registry information is available on the CMSC website, and interested individuals can download a copy of the enrollment questionnaire. Many MS support groups also distribute enrollment questionnaires to their members.

Number of Participants

Number of Participants: 42,000
Number of Participants with Biological Samples
Supplementary Information about selection criteria: The number of active participants is over 7,000.

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Data Collection Event

NARCOMS - Enrollment

Enrollment by participants is complete with submission of the enrollment survey.

Information was collected about demographics (ethnicity, education, age, etc.), lifestyle, quality of life, disease history (diagnosis, relapses, initial symptoms), functionality, other health, conditions, providers, and therapies (past and current).

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Collected Dataset / NARCOMS_Enrollment

NARCOMS_Enrollment

Population

NARCOMS population

Data Collection Event

NARCOMS - Enrollment

Files

Variables Classifications