Collected Dataset / MSSR_Followup_2

The population consists of veterans who were diagnosed with MS or a related disorder (Radiologically Isolated Syndrome (RIS), Clinically Isolated Syndrome (CIS), Neuromyelitis optica (NMO) who were 18 years old or older.

Information was collected directly through a survey from patients, as well as from clinicians through the Multiple Sclerosis Assessment Tool (MSAT), Veterans AffairsCorporate Data Warehouse (CDW), Veterans Affairs Converged Registries Solution (CRS).

Information was collected about demographics, clinical history, disease-modifying therapy, disability, activities of daily living, multiple sclerosis symptoms, comorbidity, multiple sclerosis quality of life and generic quality of life.

Demographics included information such as age, sex, race, ethnicity, marital status, education, income, employment, living situation, and insurance.

Clinical history included information such as date of onset and diagnosis, multiple sclerosis subtype (relapsing-remitting multiple sclerosis, secondary-progressive multiple sclerosis , primary-progressive multiple sclerosis , progressive-relapsing multiple sclerosis), recent relapse history.

Disease-modifying therapy included chronological history of disease-modifying therapy use, reasons for stopping/switching, new disease-modifying therapychange.

The Patient Determined Disease Steps (PDDS) was used to collect information on MS-related disability.

Multiple Sclerosis symptoms were assessed with a checklist (MSSC).

Finally, multiple sclerosis quality of life and generic quality of life were assessed with the Multiple Sclerosis Impact Scale (MSIS-29) and the 12-Item Short Form (SF-12).