Maelstrom Research Staging | iConquerMS

iConquerMS_Follow-up4

Networks -

Variables -

Associated study iConquerMS Contingency Table

Population

iConquerMS population

The population is composed of individuals living with multiple sclerosis.

Selection Criteria

Minimum age

Newborns

Twins

Countries

United States of America

Territory

Massachusetts

Ethnic Origin

Health Status

Diagnosed with multiple sclerosis (MS)

Recruitment

Sources of recruitment

General population

General Population

Volunteer enrolment

Supplementary Information

The Engagement Committee is responsible for the recruitment, engagement, and retention of people affected by Multiple Sclerosis (MS). Recruitment strategy initially relied on the “trusted voice” of leading Multiple Sclerosis (MS) patient bloggers to help promote enrollment in the network. Participants register in the network through its online portal .

Number of Participants

Number of Participants: 4,920
Number of Participants with Biological Samples

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Data Collection Event

iConquerMS - Follow-up 4

Information is collected from participants through surveys which collected information about demographics, Multiple Sclerosis (MS) history, overall health, quality of life, comorbidities, physical activity, wellness and diet, as well as abilities and disabilities.

Participants arranged for their health records and blood and other biological samples to be sent to researchers through the network or the Accelerated Cure Project for Multiple Sclerosis.

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Collected Dataset / iConquerMS_Follow-up4

iConquerMS_Follow-up4

Population

iConquerMS population

Data Collection Event

iConquerMS - Follow-up 4

Files

Variables Classifications